Myaware are continuing to engage with the relevant companies linked to the Propantheline Bromide shortage. Read more here... Read more
Myaware and MDUK sent a joint letter to NICE and the related companies about targeted therapeutics in the myasthenia community. Read more about our letter and petition here Read more
Myaware are continuing to engage with the relevant companies linked to the Propantheline Bromide shortage. In the meantime, we have some guidance regarding alternatives and importers for unlicensed propantheline. Read more
Efgartigimod is due to be assessed in a 3rd committee meeting with NICE in May. We are looking for the myaware community to put forth their own comments about the appraisal process so far and have prepared a guide for those who may not have done this before. Read more
The appraisal for assessment of the use of Ravulizumab on the NHS has been withdrawn by the company. A third committee meeting to assess Efgartigimod has been scheduled for May 2024 following the release of further draft guidance. Myaware are looking for members to get involved and share their views with NICE to emphasise the importance of new treatments to the myasthenia community. Read more
As of October 2023, NICE have released initial guidance not recommending the use of Ravulizumab on the NHS. Click here to find out more about what this draft guidance entails and how myaware members can provide their input. Read more
The Medicines and Healthcare products Regulatory Agency (MHRA) have released new guidance following a small number of reports of myasthenic aggravation in patients taking statins. Read more
Guidance not recommending the use of Efgartigimod on the NHS. Click here to find out more... Read more
Learn more about Rituximab (MabThera). Read more
Learn more about Ravulizumab (Ultomiris). Read more
Learn more about Mycophenolate (Cellcept/Myfenax). Read more
Learn more about Neostigmine bromide (Bloxiverz). Read more
Learn more about Pyridostigmine (Mestinon). Read more
Find out about the Early Access to Medicines Scheme. Read more
Learn more about Azathioprine (Imuran). Read more
Learn more about Efgartigimod (Vygart). Read more
Steroids are a type of medication called an immunosuppressant. Read more
Methotrexate does not work immediately; it can take up to 12 weeks before you have any benefit. Read more
The dose of ciclosporin depends on your body weight and the medical condition being treated. Read more
It takes about 30 to 60 minutes to start working after you have taken it. Read more
Find out how a thymectomy can help people with myasthenia gravis. Read more
IVIg is given intravenously into a vein via an infusion pump. Read more
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